The Hypersomnia Foundation strives to improve the lives of people with hypersomnia by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions.
OUR CORE BELIEFS
- All people with Hypersomnia deserve full and proper treatment.
- Optimal diagnosis and treatment derives from better knowledge.
- All of the causes of Hypersomnia can be discovered and properly treated.
- Through participation we can predict, prevent, and personalize treatment for Hypersomnia.
OUR GOALS & OBJECTIVES
- To increase community and physician awareness of the primary Hypersomnia syndromes.
- To provide a source of high quality, timely education for both people with Hypersomnia and health care providers regarding Hypersomnia.
- To form a community of people with Hypersomnia and their loved ones for mutual support.
- To promote much needed research into the causes and treatments of Hypersomnia, with a special focus on novel ideas with excellent potential for transforming care of people with Hypersomnia .
- To assist in translating new discoveries into improved outcomes and quality of life for people with Hypersomnia.
FOUNDING BOARD MEMBERS
- Catherine (Cat) Page-Rye
Catherine Page-Rye (Catherine Page/Catherine Rye) Graduated from the University of Illinois-Chicago and in 1979 founded Clerks on the Run, a company servicing Chicago area Attorneys. In 1984 she married David Rye, a medical student who was completing his MD, PhD degrees at the University of Chicago, and is mother to three adult children. After selling her interest in Clerks on the Run, she started Page Builders, Inc, a custom, high-end, residential construction company with her brother that, between the years 1984-2007 grew into a successful company. This small business at one time had 9 full time employees. In 1992 David accepted a faculty position at Emory University and the family moved to Atlanta, Georgia. Catherine continued to commute to her business in Chicago. In 2005 she established Charles Page Builders, LLC as a new entity focused upon high-end remodel work on Chicago’s north shore. In her role as president of both companies she was responsible for bidding all projects, preparation and communication of proposals and change orders to clients, interviewing sub-contractors, negotiation and awarding of contracts, negotiating insurance, applying for permits, and supervising office staff and job site superintendents. Upon selling this company Catherine has embraced volunteerism as a new passion in her life. She was chairperson of the stewardship committee of Atlanta Unity Church for three years (2011-2014), sings in the choir, and is a newly elected executive board member. She has been active as a co-founder of the Hypersomina Foundation and is committed to increasing awareness, and advocating for proper diagnosis and successful treatment for every person living daily with hypersomnia.
- Catherine (Cate) Murray
Catherine (Cate) Friederich Murray’s professional interest in sleep medicine developed more than 20 years ago when she began working as the coordinator of the Standards of Practice and Research Committees at what is now the American Academy of Sleep Medicine. She subsequently served as the Director of Communications and Research and was the Executive Director of the Restless Legs Syndrome Foundation before launching a medical writing and editing business in 2002. Her personal interest in sleep medicine, and hypersomnia specifically, has been honed over those same 20+ years. Little did she know that her precious five-week-old daughter’s sleeping from 8 PM to noon the next day in 1989 would be a harbinger of a diagnosis of hypersomnia with long sleep time in 2013. When Cate is not crisscrossing the country helping with grandchildren, you can find her at home with her husband, Michael, in Scottsdale, Arizona.
- Jennifer (Jenn) Beard
Jennifer Beard is the President and CEO of Quest Virtual School and is an Assistive Technology Specialist with Fulton County Schools in Georgia. She has a substantial breadth and depth of experience in education, has worked in patient advocacy, and as a legal assistant. She is a Certified Master Teacher, gifted educator, educational technologist, & professional development facilitator. She serves on the Vanguard Technology Team and is a League of Innovative Teachers member. She leads several virtual international educational technology development groups. Throughout her educational career Ms. Beard has been nominated for several prestigious awards including Teacher of the Year, Outstanding Young Educator, and Connected Educator. She was recently selected as one of 200 teachers nationwide to participate in a fireside chat with The Bill & Melinda Gates Foundation. She has facilitated several educational technology conference sessions across Georgia. The Hypersomnia Foundation is an important cause to Ms. Beard as one of her loved ones suffers from Idiopathic Hypersomnia. Ms. Beard has first-hand experience in what this disease can do to family relationships and how it effects people suffering with the disease. Ms. Beard uses her passion for teaching and learning to help raise awareness about Hypersomnia and leverages the power of technology to help The Hypersomnia Foundation magnify their impact.
SCIENTIFIC ADVISORY BOARD
Andrew Jenkins, PhD. Dr Jenkins is an Associate Professor of Anesthesiology at and Assistant Professor of Pharmacology at Emory University who studies drugs and chemicals that induce sleep, and inhibit brain function. He has identified several new drug-binding sites in the brain and is currently investigating how inhibitory ion-channels control the function of brain cells. Andrew received his doctorate in Biophysics from Imperial College, London.
David Rye, MD., PhD. Dr. Rye is a Professor of Neurology at Emory University and specializes in hypersomnia, narcolepsy, restless leg syndrome and other sleep disorders. He graduated from University of Chicago School of Medicine. He and his team discovered the trypsin-sensitive substance in the brain that stimulates GABA receptors and induces sleep.
MEDICAL ADVISORY BOARD
Lynn Marie Trotti, MD, MSc. Dr. Trotti is an Assistant Professor of Neurology at Emory University who specializes in idiopathic hypersomnia, narcolepsy, and other sleep disorders. She has recently completed two clinical trials of novel medications for hypersomnia, and continues to investigate causes underlying excessive sleepiness and related symptoms.