Researchers/Pharma

The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Take advantage of our numerous free and vetted resources.

The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Take advantage of our numerous free and vetted resources.

About IH and Its Treatment

Researcher Resources

Events & Speakers 

  • Learn more about our speakers, where we’ve been and where we’re going. 
  • Watch conference videos.
  • Attend, sponsor, and/or participate in a cutting-edge HF event. 
  • HF also attends a number of conferences each year to promote awareness and provide education. 
  • If you would like to sponsor or speak at a future HF event, meet with an HF board member, OR are interested in finding a speaker (patient advocate or medical professional) OR a patient panel to discuss “living with IH”, please contact us.

HF’s International Patient Registry

  • Our registry at CoRDS (Coordination of Rare Diseases at Sanford) contains data on over 2000 people with IH and the related hypersomnias. It’s free for qualified researchers to apply to access the data and/or to communicate with the respondents. Contact CoRDS directly at cords@sanfordhealth.org or 1-877-658-9192.
  • Review the complete registry questionnaire HERE.
  • Please encourage patients with IH and related sleep disorders to join this registry. It’s free and the data is deidentified.