The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Take advantage of our numerous free and vetted resources.

About IH and Its Treatment

Researcher Resources

Events & Speakers 

  • Learn more about our speakers, where we’ve been and where we’re going. 
  • Watch conference videos.
  • Attend, sponsor, and/or participate in a cutting-edge HF event. 
  • HF also attends a number of conferences each year to promote awareness and provide education. 
  • If you would like to sponsor or speak at a future HF event, meet with an HF board member, OR are interested in finding a speaker (patient advocate or medical professional) OR a patient panel to discuss “living with IH”, please contact us.

HF’s International Patient Registry

  • Our registry at CoRDS (Coordination of Rare Diseases at Sanford) contains data on over 3550 people with IH and the related hypersomnias. It’s free for qualified researchers to apply to access the data and/or to communicate with the respondents. Contact CoRDS directly at or 1-877-658-9192.
  • Review the complete registry questionnaire HERE.
  • Please encourage patients with IH and related sleep disorders to join this registry. It’s free and the data is deidentified.
  • Check out some initial results from the registry: 2020 Trotti et al, IH Symptom and Treatment Insights From the HF Patient Registry.

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.