Share Your Journey

Directions

Thank you for being willing to share your personal journey with the world. We want to hear from people diagnosed with idiopathic hypersomnia and related disorders, as well as their supporters! Everyone has a story to tell that will resonate with someone else. Here are some personal journey topic ideas to get you started. Feel free to select one of these, or to use one of your own. Then, complete the form below. You can also apply to match with a medical student who wants to learn more about living with a rare disease: Global Genes RARE Compassion Project.

The path to a proper diagnosis
The bravest moment of your life
What makes your supporters special
Why you can succeed in life
The experience of being lifted up by a supporter
A surprising turn of events you experienced
If you could change someone’s hypersomnia experience
If you could have a do-over
Words that prompted hope
Your favorite time with family
An awkward social moment
A brain fog story
The journey as a supporter

Your story should be approximately 500 words in length.

Name(Required)

First Last

Email(Required)

Address(Required)

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Which of the following personal information will you allow the Hypersomnia Foundation to share with your story?(Required)

File upload

If you prefer to write your story in a document, you may upload your document here. Accepted file types include .doc, .docx, .pages, .pdf and .txt.

Accepted file types: doc, docx, pages, text, pdf, Max. file size: 50 MB.

Your journey

In 500 words or less, please share your personal story in the box below. Or, write your story in a document and upload it above.

Photo upload

If you have a photo of yourself that you would like us to share with your story, please upload it here. Please make sure that you own all the rights to any image before uploading. Accepted file types include .jpg, .gif, .png, and .pdf.

Accepted file types: jpg, gif, png, pdf, Max. file size: 50 MB.