Resources & Education
Living with idiopathic hypersomnia (IH), narcolepsy types 1 and 2, and Kleine-Levin syndrome affects many areas of our lives.
Whether you’re newly diagnosed, have been living with a hypersomnia sleep disorder for a long time, or are a supporter, this page will link you to a wealth of information on how to get effective treatment and handle challenges you may face.
Getting Diagnosed & Post Diagnosis
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Finding Doctors: Finding and working with doctors who treat hypersomnias.
Finding Doctors: Finding and working with doctors who treat hypersomnias.
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Medicines: Medicines for idiopathic hypersomnia and narcolepsy and avoiding interactions with hormone medicines.
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Quality of Life: Tips from people who have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
Quality of Life: Tips from people who have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
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Sleep-Wake Journaling: You can use this journal to log your sleep, medicines, activities, and symptoms.
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Preparing for Medical Procedures: if you have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
Preparing for Medical Procedures: if you have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
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Pregnancy and safe baby care: for all parents with idiopathic hypersomnia or Narcolepsy Type 1 or 2.
Pregnancy and safe baby care: for all parents with idiopathic hypersomnia or Narcolepsy Type 1 or 2.
Living With Hypersomnia
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What's It Like To Live With A Hypersomnia: What’s it like to walk a mile in the shoes of people with hypersomnias.
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Educating Others: about your sleep disorder such as idiopathic hypersomnia, Narcolepsy Type 1 or 2, or Kleine-Levin syndrome.
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Napping In Your Car Safely: if you have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
Napping In Your Car Safely: if you have idiopathic hypersomnia or Narcolepsy Type 1 or 2.
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Going to school while coping with a hypersomnia: Resources if you think you might need accommodations (changes) or disability services.
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Planning for job accommodations and disability income: Find ideas for job accommodations and advice on how and when to ask for them.
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Dealing with health insurance denials: When your insurance denies a claim for a medicine or procedure that you need, you will need to file an appeal.
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Saving money on prescription medicines.
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Financial tips for dependent adult children with sleep disorders: Find out if your health insurance policy will extend coverage for your child beyond age 26.
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Supporting a loved one who has a sleep disorder: Learn about ways to offer help and support while also taking care of yourself.
Our directory is a tool you can use to find your next sleep doctor and other healthcare professionals who can help treat your hypersomnia sleep disorder, such as behavioral sleep medicine specialists, psychologists, and physician assistants (PAs).
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Search Our Directory
The Hypersomnia Foundation invited Jessamine Griewahn-Okita, EdM to create this guide in her capacity as a K-12 classroom teacher, education consultant, and person who has idiopathic hypersomnia (IH). The advice in this guide was summarized from interviews with participants in an online focus group of educators who have IH and derived from standard qualitative research methods.
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View the Guide
