News, Stories and Updates From the World of Sleep
SomnusNooze Topics: Personal Journey Stories
Share Your Journey | My Way of Saying That Research on IH Matters
The day a doctor finally took me seriously when I told him about always being tired, oversleeping almost every day, and generally walking through life in a sleepy fog was one of the best days of my life. I wasn't lazy! I wasn't alone! There were other... read >
Share Your Journey | I’m Not Lazy
I guess my story is a lot like other people’s stories. . .or at least I hope it's a lot like theirs. My symptoms started when I was about 14 years old. Actually, except for my early childhood, I don't really remember being awake a lot. In school, I... read >
Share Your Journey | What Was It I Needed? My Grocery Trip with Brain Fog
It’s the end of the day and the awake drugs I take so that I can function during the day have worn off. I’m super sleepy now, but my husband, who is cooking me dinner, asks me to go to Kroger to buy three items we need. I can handle three items and I... read >
Share Your Journey | A Two for One Challenge
Until the summer after I graduated from high school, I had seemingly unlimited energy. A typical day for me would be waking at 5:00 am, attending class until 1:30, and then cramming in homework before heading to marching band or track practice. Often... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
Share Your Journey | Drowning in Sleep
One would think that my mother chose one of those underwater birthing experiences or a birth assisted by dolphins when she had me…since I’ve spent my entire life in or under water. Literally? No, figuratively—living in and under water is my... read >
Share Your Journey | Taking a Stand for a Proper Diagnosis
I have always been a person who could not get enough sleep. Regardless of how long I slept—13 or 14 hours a night was commonplace—I still never felt refreshed upon waking. My teenage years were tough. My school attendance record was appalling, but... read >
Share Your Journey | The Long and Sleepy Road: A Parent’s Perspective
It’s been a long and interesting road. Growing up in the Dakotas, Trevor was an athletic, outgoing, energetic boy. He played soccer and hockey, enjoyed hanging out with his buddies, and was a great student. In retrospect, we noticed a few strange things... read >