Hypersomnia Foundation

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-03-25 19:00 - 21:00 (America/New_York) | GA
UNIGHT – Discuss. Share. Connect.
Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The March UNIGHT meeting will discuss “Nutritional Considerations for Central Disorders of Hypersomnolence” with special guest Ellen Wermter.
ABOUT OUR SPEAKER – ELLEN WERMTER
Ellen is a family nurse practitioner and diplomate in behavioral sleep medicine (DBSM). She is a dedicated sleep professional who actively treats patients full time at Charlottesville Neurology and Sleep Medicine in Virginia. Ellen offers CBT for both insomnia and hypersomnia. In addition to her clinical work, she is a regular contributor with the Better Sleep Council as well as other media outlets about the science of sleep and healthy rest. Ellen enjoys sharing her expertise in the sleep field through guest lecturing at universities and other speaking engagements. She is a member of the medical advisory board for Narcolepsy Network.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-04-29 19:00 - 21:00 | GA
UNIGHT – Discuss. Share. Connect.
Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. This month’s UNIGHT discusses “Mental Health in Central Disorders of Hypersomnolence” with special guest Alicia Roth, Ph.D. DBSM.

ABOUT OUR SPEAKER – Alicia Roth, Ph.D. DBSM, is a Clinical Health Psychologist and Staff at the Cleveland Clinic Sleep Disorders Center and is board-certified in Behavioral Sleep Medicine. She completed her doctoral training at the University of Florida, Internship at the Baltimore VA, and Behavioral Sleep Medicine Fellowship at The Cleveland Clinic. Her clinical work focuses on treating a range of sleep disorders, including insomnia, circadian rhythm disorders, central disorders of hypersomnia and nightmares, as well as CPAP desensitization.
She has published numerous research articles on the intersection of sleep and chronic health conditions (e.g., fibromyalgia, heart disease, and persons with Alzheimer’s and their caregivers). Dr. Roth’s current research focuses on implementation of population health initiatives for insomnia treatment as well as developing treatments for central disorders of hypersomnia. In 2022, she was awarded the Society of Behavioral Sleep Medicine (SBSM) Early Career BSM Advocacy Award.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

Houston, TX - HF Conference
2024-05-31 - 2024-06-02 | C Baldwin Hilton Hotel in Houston, 400 Dallas Street, Houston, TX, 77002, United States
Join us in Houston, Texas from May 31 – June 2, 2024!
REGISTER HERE!
Join us in beautiful Houston, Texas for the Hypersomnia Foundation’s #BeyondSleepy 2024 Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and discussion sessions; an evening reception; and more. Come catch up with old friends and meet new ones. The conference will be held at the C. Baldwin Hilton Hotel Houston. Book your room at a discounted conference rate today!
With the generous support of our sponsors, virtual registration is now free!
Whether you attend in-person or virtually, you’ll also get access to recordings of all the general sessions for 3 months after the conference via Whova, so you can still “attend” even if those dates/times don’t work for you! (Please note that all breakout sessions are only available live in person. They will not be recorded or streamed.)
REGISTER TODAY!

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-06-24 19:00 - 21:00 | GA
UNIGHT – Discuss. Share. Connect.
Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join this month’s UNIGHT for a discussion with Maggie G. Lavender, MSN, RN, FNP-C, on “Communication with Your Healthcare Provider.”
ABOUT OUR SPEAKER – Maggie Lavender, MSN, RN, FNP-C, is a Board-Certified Family Nurse Practitioner licensed in Texas with specialization in Sleep Disorders Medicine and Neurology. She attended Louisiana State University Health Sciences Center, where she received her Bachelor of Science in Nursing. She began her career working in a pediatric intensive care and burn unit. She later moved to Houston, Texas and continued her career in a neuroscience intensive care unit at a level one trauma center. She then completed her Master of Science in Nursing and Post-Master’s Emergency Nurse Practitioner Certificate simultaneously at the University of Texas Health Science Center. Her Nurse Practitioner career began in Houston, Texas at Comprehensive Sleep Medicine Associates (CSMA) alongside Dr. Jerald Simmons, beginning in 2012. She briefly moved to Pittsburgh and provided care at an Internal Medicine Practice before moving back to The Woodlands, Texas. She is currently practicing again at CSMA and is specializing in comprehensive sleep disorders, neurology, and epilepsy. Maggie has evolved to be a recognized Nurse Practitioner specialist on a national level, and currently functions as a consultant and lecturer on the management of narcolepsy patients.
Maggie’s passion for nursing and caring for people began in early childhood. She has always been driven to provide exceptional care to every one of her patients, not only treating symptoms, but also by educating and providing preventative medical care to promote healthy lifestyles. Maggie is forever grateful for the blessing and opportunity to care for and help individuals regain their happiness in life.
Maggie and her husband reside in Montgomery, Texas with their daughter and son. In her spare time, she enjoys cooking, gardening, and spending quality time with her family.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-07-29 19:00 - 21:30 | GA
UNIGHT – Discuss. Share. Connect.
Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is a discussion on “Using Your Voice For Change” featuring special guest Josh Andrews. Josh will share his journey as an NFL player, husband, and father living with narcolepsy and explain why he’s chosen to advocate for sleep health and sleep disorder awareness.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.

ABOUT OUR SPEAKER – JOSH ANDREWS
Josh Andrews became a Super Bowl champion in 2017 while playing as an offensive lineman for the Philadelphia Eagles. He started playing football at a young age and continued through high school and college at Oregon State University. His athletic talents led him to positions on several NFL teams, including the Minnesota Vikings, Indianapolis Colts, New York Jets, Atlanta Falcons, and New Orleans Saints. Josh and his wife Amber have three children, and Josh is also living with narcolepsy.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-08-26 19:00 - 21:00 | GA
UNIGHT – Discuss. Share. Connect.
Monday, August 26, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, August 26 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion about “Sleep Health Disparities” with Dr. Michael Grandner.

ABOUT OUR SPEAKER – DR. MICHAEL GRANDNER
Dr. Grandner is a licensed Clinical Psychologist certified in Behavioral Sleep Medicine, Director of the Sleep and Health Research Program, and Associate Professor of Psychiatry, Psychology, Medicine, Nutritional Sciences, and Clinical Translational Science at the University of Arizona. His clinical work focuses on non-medication treatments for sleep disorders. His research examines the relationship between sleep and obesity, diabetes, heart disease, daytime functioning, and longevity. He is the author or co-author of over 250 academic publications. He is a frequent consultant and speaker on the issue of sleep health and has been invited multiple times to the US Congress to discuss the role of sleep in health and functioning. He is a fierce advocate for sleep disorders patients and for helping improve the patient experience.

Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-09-30 19:00 - 20:30 | GA
UNIGHT – Discuss. Share. Connect.
Monday, September 30, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us Monday, September 30 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a panel discussion on clinical trials focusing on their significance and tackling common misinformation surrounding them. Our panelists will include Diana Kimmel, Hypersomnia Foundation Board member, and Shelly Gonzales, Hypersomnia Foundation volunteer.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL and IN-PERSON – Atlanta, GA - #BeyondSleepySatellite HF Conference
2024-10-19 10:00 - 16:00 | GA
The Hypersomnia Foundation is hosting a series of one-day hybrid conferences throughout the United States, providing a wonderful opportunity to connect with others living life with a sleep disorder. Our next #BeyondSleepySatellite event is in Atlanta, Georgia on Saturday, October 19, 2024, from 10:00 a.m. to 5:00 p.m. (ET) at the Emory Conference Center Hotel.
The day kicks-off with breakfast at 9:00 a.m. with presentations beginning at 10:00 a.m. Lunch and snacks will be provided during a day of breakout sessions, ample Q&A, and a panel discussion. Dinner will be provided at the conclusion of the day.
Registration for #BeyondSleepySatellite: Together in Atlanta is $20 per person. Coming with your family? Each additional family member is $5 per person.
For those traveling to Atlanta, we have secured a room reservation block at the Emory Conference Center Hotel. For rates and reservations, visit their website.
We look forward to getting #BeyondSleepy together in Atlanta!

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-11-25 19:00 - 20:30 | GA
UNIGHT – Discuss. Share. Connect.
Monday, November 25, 2024 at 7:00 p.m. (Eastern) via Zoom
This month’s topic: Actigraphy in Central Disorders of Hypersomnolence: Wearables and Sleep Tracking
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, November 25, at 7:00 PM Eastern / 4:00 PM Pacific via Zoom for a discussion on the strengths, limitations, and overall utility of wearable sleep tracking technology for research and clinical applications. The session will be led by Jesse Cook, PhD, a postdoctoral fellow in the Department of Psychiatry at the University of Wisconsin-Madison School of Medicine and Public Health.

About Our Speaker – Jesse Cook, PhD
Jesse Cook, PhD (he/him) is a postdoctoral fellow in School of Medicine of Public Health, Department of Psychiatry, at the University of Wisconsin-Madison. He received his doctoral degree in Clinical Psychology from the University of Wisconsin-Madison and completed his pre-doctoral internship at the VA Palo Alto Health Care System. His scientist-practitioner training and skillset centers on the intersection of sleep and mental health, with his primary program of research purposed to advance the classification, assessment, and treatment of Idiopathic Hypersomnia/Hypersomnolence Disorder. Additionally, he has produced a body of research related to the strengths, limitations, and overall utility of wearable sleep tracking technology for research and clinical purposes, and recently served as a coauthor for the inaugural State of the science and recommendations for using wearable technology in sleep and circadian research. Clinically, he embraces an integrative orientation, drawing principally from CBT and third-wave therapy approaches (i.e., ACT and DBT). He is very passionate about behavioral sleep medicine and intends to specialize as a Diplomate in Behavioral Sleep Medicine.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

UNIGHT - Support4Supporters
2025-03-12 19:00 - 20:00 | GA
UNIGHT is a free virtual get-together for people who care for someone who has a sleep disorder. This group will meet on the second Wednesday of each month via Zoom and will be led by the amazing Christine Ingrassia!⁠

#BeyondSleepy Webinar
2025-03-14 12:00 - 15:00 | GA
Join on Friday March 14, 2025 for a #BeyondSleepy Webinar where we discuss emerging and important topics relevant to the sleep community. This webinar is free. All are welcome.

#BeyondSleepy Conference
2025-06-06 - 2025-06-08 | The Westin Seattle, 1900 5th Ave, Seattle, WA, 98101, United States
Join us in Seattle, WA from June 6 – June 8, 2025!
Join us at the Westin Seattle from June 6-8, 2025, for the Hypersomnia Foundation’s #BeyondSleepy 2025 Conference—an event dedicated to people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome, as well as their supporters.
We’re bringing together a fantastic lineup of expert speakers to share the latest in research, treatments, and clinical trials. The weekend will also feature networking and discussion sessions, an evening reception, and opportunities to connect with others who truly understand life with a hypersomnia disorder.
With the generous support of our sponsors, virtual registration is free!
Whether you attend in-person or virtually, you’ll also get access to recordings of all the general sessions for 3 months after the conference via Whova, so you can still “attend” even if those dates/times don’t work for you! (Please note that all breakout sessions are only available live in person. They will not be recorded or streamed.)
Hotel Room Block Booking
