Hypersomnia Foundation

VANCOUVER, BC: WUN-HF Education Day
2019-09-21 08:30 - 16:30 (America/Los_Angeles) | Vancouver Convention Centre, Vancouver, B.C., Canada, 999 Canada Pl, Vancouver, British Columbia, V6C 3C1, Canada
Understanding Narcolepsy and Hypersomnia: Insights and Perspectives
This free event is open to everyone!
HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:
This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, impact of narcolepsy and idiopathic hypersomnia, comorbidity and how to live a full life with narcolepsy and hypersomnia.
This special Education Day is in collaboration with the Hypersomnia Foundation and World Sleep. This will offer a unique opportunity for people with narcolepsy and/or idiopathic hypersomnia to mix and mingle with sleep doctors, clinicians and researchers from World Sleep 2019. It takes place during the first-ever Sleep Expo through World Sleep 2019, a full scientific congress on sleep medicine and research.
Presentations from Dr. Thomas Scammell, Dr. Brian Murray, Dr. Yves Dauvilliers, Kelsey Biddle, Dr. Indra Narang, and Shelly Weiss will address pertinent sleep disorder issues including mental health, transitional care, lifestyle, current research and treatment. There will also be special breakout panel discussions focusing on narcolepsy and idiopathic hypersomnia.
By registering for Wake Up Narcolepsy Education Day at Sleep Expo 2019, you will ALSO have access to Sunday, September 22, 2019 Sleep Expo Program– including Public Lecture Series, Facilitator-Led Discussion, and Sleep-Related Author Tables.
Registration is free – click on this link and scroll all the way to the bottom to find the ORANGE “Register” button: https://www.wakeupnarcolepsy.org/education-day/

BIRMINGHAM: The First Annual Meeting of SBSM (The Society of Behavioral Sleep Medicine)
2019-09-12 - 2019-09-15 | Renaissance Birmingham Ross Bridge Resort & Spa, 4000 Grand Ave, Birmingham, AL, 35226, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
The Hypersomnia Foundation has accepted an invitation to work with SBSM in the preparation of an educational program on idiopathic hypersomnia. Dr. Lynn Marie Trotti, chair of HF’s Medical Advisory Board, will provide two lectures, and HF Board Member Sarah Beazley will present and facilitate a patient impact panel to help attendees understand the life-changing symptoms of IH.

KANSAS CITY, MO: AAFP (American Association of Family Physicians) National Conference for Medical Students and Family Medicine Residents
2019-07-25 - 2019-07-27 | Kansas City Convention Center, 301 West 13th Street, Suite 100, Kansas City, MO, 64105, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 2,500 medical students and family medicine residents in order to raise awareness of IH and provide education about rare sleep disorders to medical professionals who are very likely to encounter sleepy patients first – future family medicine physicians. Most medical schools provide only 3 hours – on average – of instruction about sleep, and HF wants to encourage these young medical professionals to consider the possibility of a sleep disorder when diagnosing a sleepy (or fatigued) patient.

SEATTLE: HF Educational Meeting
2019-06-29 10:00 - 15:00 (America/Los_Angeles) | Seattle Airport Marriott, 3201 South 176th Street, Seattle, WA, 98188, United States
This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event.
This gathering will be the first HF outreach and awareness event on the West Coast, and is open to everyone!
Click HERE to purchase your tickets now on Eventbrite. The cost is $25 and includes lunch.
Register before May 30 to receive a FREE “Getting #BEYONDSLEEPY in Seattle!” t-shirt.
[For anyone taking part in Hypersomnia Alliance’s “Snooze Cruise 2019,”* note that this meeting is conveniently scheduled for the day after your tour disembarks in Seattle!]
The Hypersomnia Foundation has been able to reserve a limited block of rooms at the Seattle Airport Marriott for $142/night on Friday, June 28th and Saturday June 29th. Reserve your room now!
Guest speakers include:

Dr. David Rye of Emory University
Dr. Flavia Consens of University of Washington/Harborview Medical Center
Rebecca King, HF’s new Legislative Advocate, will share her current advocacy work in Washington, D.C. and at the NIH in Bethesda as she fights for increased funding for sleep disorder research.
Sarah Beazley, Hypersomnia Foundation Board member, will hold an interactive workshop on “Effective Self-Advocacy” for people with IH and related sleep disorders.
Julie Flygare, President & CEO of Project Sleep, will present “Taking Action Through Advocacy” showing how each of our voices makes a difference in educating decision-makers and advancing science to improve outcomes for those living with IH.
Representatives from Balance Therapeutics will also provide information about their ongoing Arise2 IH clinical trial.

*Please note that “Snooze Cruise 2019” is a separate event, organized through the Hypersomnia Alliance, not the Hypersomnia Foundation. (For further information about Snooze Cruise, click HERE.)

BOSTON: ASCA (American School Counselors Association) 2019 Annual Conference
2019-06-29 - 2019-07-02 | Hynes Convention Center, Boston MA, 900 Boylston St, Boston, MA, 02115, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among nearly 3,600 school counselors to raise awareness of IH and provide education about rare sleep disorders to those most likely to be sent students who frequently sleep in class.
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! If we raise awareness and share information on these rare sleep disorders, we believe more people with excessive daytime sleepiness would be referred for sleep evaluations, sooner. (Imagine if we could shorten the time between symptoms and diagnosis, thought to be 6-7 years on average!)

SAN ANTONIO: SLEEP 2019 – APSS (Associated Professional Sleep Societies) Annual Meeting
2019-06-08 - 2019-06-12 | Henry B. González Convention Center, San Antonio, 900 E Market St, San Antonio, TX, 78205, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around the U.S. and across the globe.
HF Board Members will be on hand to welcome the expected heavy traffic at our exhibit booth at one of the most important annual sleep medicine meetings; we will network, educate, and distribute brochures and information. When appropriate, we will offer internet signups to our online provider directory on our website. We will also attend meetings with other sleep organizations and pharmaceutical companies. Finally, HF will host a private annual meeting of our Medical and Scientific Advisory Boards and this year, our Board of Directors will hold an in-person Strategic Board Meeting to set short- and long-term goals and objectives to advance HF’s mission.
NOTE: This year, there will be several sessions for sleep professionals on idiopathic hypersomnia, as interest in researching and treating this disorder has grown. In addition, HF Medical Advisory Board chair Dr. Lynn Marie Trotti will present during the poster session. At least one HF Board member will attend each of these and prepare written reports for our SomnusNooze newsletter!

DENVER: ACHA (American College Health Association) 2019 Annual Meeting
2019-05-28 - 2019-06-01 | Sheraton Downtown Hotel, Denver, Colorado, 1550 Court Place, Denver, CO, 80202, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among nearly 2,000 college health providers to raise awareness of IH and provide education about rare sleep disorders to those most likely to be consulted by sleepy students.
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! If we raise awareness and share information on these rare sleep disorders, we believe more people with excessive daytime sleepiness would be referred for sleep evaluations, sooner. (Imagine if we could shorten the time between symptoms and diagnosis, thought to be 6-7 years on average!)

BALTIMORE: HF #BeyondSleepy Conference
2018-06-02 - 2018-06-03 | Baltimore Waterfront Marriott, United States
For all the details: CLICK HERE.
For the full schedule, CLICK HERE.

World Sleep 2017
2017-10-07 - 2017-10-11
The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity to increase awareness of IH at this important global meeting of sleep professionals,” said Diane Powell, Chairwoman of HF’s Board of Directors. “It’s also encouraging that hypersomnias will be the subject of three different events at the meeting itself.”

Idiopathic Hypersomnia Awareness Week 2017
2017-09-04 - 2017-09-10
HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please put the dates in your calendar, and be sure to check our social media each day during this important awareness event!

BOSTON: HF #BeyondSleepy Conference
2017-06-04 13:00 - 16:30 (America/New_York)
1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116
We have booked Rabb Lecture Hall in the newly renovated Johnson Building at the Boston Public Library for another fabulous regional conference featuring dynamic speakers.In this state-of-the-art facility, our outstanding speakers will cover research updates on idiopathic hypersomnia and related disorders. This year’s conference, however, will also focus on advocacy and empowerment to assist people with hypersomnia and their supporters navigate this world living with a chronic, rare disorder.
For full details, CLICK HERE.

Top Docs Radio
2017-04-18 12:00 - 13:00 (America/New_York)
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT.

BEDRICH ROTH'S BIRTHDAY
2017-03-23

WORLD SLEEP DAY
2017-03-17

RARE DISEASE DAY
2017-02-28

DENVER: HF #BeyondSleepy Conference
2016-06-12 12:00 - 17:00 (America/Denver)
For details, CLICK HERE.

SomnusNooze 12/29/15
2015-12-29
Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.

SomnusNooze 12/22/15
2015-12-22

SomnusNooze 12/15/15
2015-12-15

Snooze TV Episode 11: Patient Registry Update
2015-12-11 20:00 - 21:00 (America/New_York)
Follow the Hypersomnia Foundation on Google+ and check out all of our listed events. Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday of every month on the Hypersomnia Foundation’s Google+ page. Won’t you join us?

SomnusNooze 12/08/15
2015-12-08

SomnusNooze 12/01/15
2015-12-01

SomnusNooze 11/24/15
2015-11-24

SomnusNooze 11/17/15
2015-11-17

Snooze TV Episode 10: Hypersomnia Research Updates
2015-11-13 20:00 - 21:00 (America/New_York)

SomnusNooze 11/10/15
2015-11-10

SomnusNooze 11/03/15
2015-11-03

SomnusNooze 10/27/15
2015-10-27

SomnusNooze 10/20/15
2015-10-20

SomnusNooze 10/13/15
2015-10-13 08:00 - 17:00 (America/New_York)
