VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-03-27 19:00 - 20:30 (America/New_York)
UNIGHT – Discuss. Share. Connect.
Monday, March 27th at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
This month’s UNIGHT is Monday, March 27th with special guest guest Dr. Michael Grandner, who will be discussing “Disparities in Sleep Medicine.”
Dr. Grandner is the Director of the Sleep and Health Research Program at the University of Arizona and the Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center. His research focuses on how sleep and sleep-related behaviors are related to cardiovascular disease, diabetes, obesity, neurocognitive functioning, mental health, and longevity.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-04-24 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, April 24 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, April 24 with special guest Dr. Jennifer Mundt, who will be discussing “Behavioral Therapies for Hypersomnia.”
Dr. Jennifer Mundt is a sleep psychologist at the Northwestern Center for Circadian and Sleep Medicine. She is an assistant professor of neurology and is board certified in behavioral sleep medicine. She is the director of the Behavioral Sleep Medicine Lab and the Behavioral Sleep Medicine Training Program at Northwestern University. Dr. Mundt serves on the board of directors for the Illinois Sleep Society.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-05-22 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, May 22 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, May 22nd at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special guest Nicole Zamary for a casual open discussion on “Workplace Accommodations for Hypersomnolence Disorders.”
Nicole Zamary is a hard-working, supportive Human Resources professional at the University of West Florida. She is passionate about helping others understand the complex nature of the HR world and an advocate for those needing assistance. After more than 15 years of struggling with unexplained exhaustion and sleepiness, she was diagnosed with type 2 narcolepsy without cataplexy at the age of 44. She is a compassionate individual, enthusiast of all things crafty, family-oriented, and a devoted grandmother.

Indianapolis, IN - HF Conference
2023-06-02 - 2023-06-04 | The Alexander, 333 S Delaware Street, Indianapolis, IN, 46204, United States
Join us in Indianapolis, Indiana from June 2 to 4, 2023 for the Hypersomnia Foundation’s 2023 #BeyondSleepy Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters.
Registration for in-person attendance is $99. Thanks to generous support from our sponsors, virtual registration is free.
Presentations will cover the latest in research, treatments, and clinical trials. Also planned are networking and discussion sessions, a pool-side evening reception, and many opportunities for everyone to catch up with old friends and meet new ones. Download the schedule for this three-day event HERE.
Whether you attend in-person or virtually, you will also get access to recordings of all the general sessions for three months after the conference via Whova, so you can still “attend” even if the June 2-4 dates/times don’t work for you! Please note that all breakout sessions are only available live in person. They will not be recorded or streamed.
The conference is being held at The Alexander hotel on South Delaware Street in Indianapolis.
We look forward to seeing you in-person and/or virtually in Indianapolis from June 2-4!

Indianapolis: APSS SLEEP 2023 (a conference for sleep medicine professionals)
2023-06-03 - 2023-06-07
The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments.
From the website https://www.sleepmeeting.org/about/:
SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS).
The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep and circadian research, promotes the translation of basic science into clinical practice, and fosters the future of the field by providing career development opportunities at all levels. There is simply no other gathering of sleep professionals anywhere of this scale. The conference is attended by thousands of individuals from all around the world, all connected by their interest and/or expertise in sleep medicine. Many of these attendees are pioneering leaders in the field. If you are looking to network, you must attend SLEEP.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-06-26 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, June 26 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, June 26th at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special guest host Dr. Yishan Xu, as she leads a discussion on “Navigating Relationships with Hypersomnolence Disorders” with panelists Matthew Horsnell, Diana Kimmel, and Michael Sparace.
Dr. Yishan Xu is a licensed clinical psychologist and board-certified sleep specialist who trained at the Stanford Sleep Center and also earned the Diplomate in Behavioral Sleep Medicine certification by The Board of Behavioral Sleep Medicine. As host of the “Deep Into Sleep” podcast, Dr. Yishan shares knowledge and tips around sleep, health, business, lifestyle, and relationships, inspiring people to discover more about themselves and to achieve a healthier mindset.
Registration is FREE!
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-07-31 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, July 31 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, July 31st at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion about “Pregnancy and Parenting” with panelists Diana Anderson, David Burley, Amy Desmarais, and Matthew Horsnell.
Registration is FREE!
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-08-28 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, August 28 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, August 28 at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion about “Legislative Advocacy” with special guest Julie Flygare, President and CEO of Project Sleep.
Julie Flygare, JD, President & CEO of Project Sleep, is an award-winning author of “Wide Awake and Dreaming: A Memoir of Narcolepsy.” Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Julie advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. She received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development. On March 22, 2022, Julie delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer?“
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL and IN-PERSON - Philadelphia, PA - #BeyondSleepySatellite HF Conference
2023-09-23 10:00 - 15:00 | Delta Hotel by Marritt – Philadelphia Airport, 500 Stevens Drive, Philadelphia, PA, 19113, United States
The Hypersomnia Foundation is hosting a series of one-day hybrid conferences throughout the United States, providing a wonderful opportunity to connect with others living life with a sleep disorder. Our next #BeyondSleepySatellite event is in Philadelphia on Saturday, September 23, 2023 from 10:00 a.m. to 3:00 p.m. (ET) at the Delta Hotel by Marriott / Philadelphia Airport.
The day kicks-off with a 9:00 a.m. breakfast before heading into a day of presentations, breakout sessions, ample Q&A, and a panel discussion. The day’s agenda, including sessions and speakers, can be found HERE.
Use the links below to download and/or view materials from this event:

Hypersomnia Foundation Top Resources
Follow the Hypersomnia Foundation on Social Media
Lumryz Informational Brochure (Avadel Pharmaceuticals)
I Have IH Campaign Survey Results (Hypersomnia Foundation and Jazz Pharmaceuticals)
IH Symptom Quiz and Idiopathic Hypersomnia Severity Scale (Jazz Pharmaceuticals)
Living with IH – What You Need to Know (Jazz Pharmaceuticals)
“Uncovering the Real-World Impact of Idiopathic Hypersomnia” – a video presentation by Marisa Whalen, PharmD, Medical Director of US Medical Affairs at Jazz Pharmaceuticals
“Clinical Study with KP1077 in Adults with Idiopathic Hypersomnia” – a video presentation by Dr. Rene Braeckman , Vice President of Clinical Development at Zevra Therapeutics and Christopher L. Drake, PhD, FAASM, Board-Certified Sleep Specialist, Professor of Medicine at the Michigan State College of Human Medicine, and Director of Sleep Research for Henry Ford Health.

Registration for #BeyondSleepySatellite: Together in Philadelphia is $20 per person. Coming with your family? Each additional family member is $5 per person. Virtual attendance registration is FREE.
For those traveling to Philadelphia, we have secured a room reservation block at the Delta Hotel by Marriott / Philadelphia Airport for $139 per night. Reserve your room today!
We look forward to getting #BeyondSleepy together in Philadelphia!

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-09-25 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, September 25 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, September 25 at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion about “Social Supports” with UNIGHT hosts Matthew Horsnell and Shelly Gonzales, Hypersomnia Foundation Board member Michael Sparace, and special guest, Hollis Rhone.
Hollis is a 22-year-old person with IH who was diagnosed when she was entering her fourth year at McGill University. She is currently in her fifth year at McGill completing a Bachelor of Arts & Science in Chemistry and Anthropology. Hollis recently joined the Hypersomnia Foundation’s Patient Advisory Council, and she is the captain of the McGill University Sailing Team this season.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-11-27 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, November 27 at 7:00 p.m. (Eastern)
Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with a sleep disorder. UNIGHT is an opportunity to discuss, share, connect, and just be ourselves.
The month’s UNIGHT is Monday, November 27 and we will have a discussion with Dr. David Plante about “Prevalence and Course of Idiopathic Hypersomnia.” Read more about Dr. Plante HERE.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2023-12-18 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, December 18 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, December 18 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special guest Dr. Shelby Harris discussing “Balancing Relationships in Central Disorders of Hypersomnolence.”
Shelby Harris, PsyD, DBSM is a psychologist and sleep specialist in private practice in New York. She is board certified in Behavioral Sleep Medicine and treats a wide variety of sleep, anxiety and depression issues using evidence-based non-medication treatments.
Her self-help book, The Women’s Guide to Overcoming Insomnia, was published in 2019 by W.W. Norton Books. Dr. Harris holds a dual academic appointment as Clinical Associate Professor at the Albert Einstein College of Medicine in Neurology and Psychiatry. Before going into private practice she was the longstanding director of the Behavioral Sleep Medicine Program at the Sleep-Wake Disorders Center at Montefiore Medical Center in NYC.
Dr. Harris has been an invited columnist for the New York Times, and is frequently in the media, including the New Yorker, Washington Post, CBS Mornings, Today Show, Good Morning America and The Drew Barrymore Show. Dr. Harris can be found on Instagram at @SleepDocShelby where she provides evidence-based information about sleep wellness and sleep disorders.
We hope you’ll join us for the December 18th UNIGHT meeting for a lively discussion with Dr. Shelby Harris.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-01-29 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, January 29 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, January 29 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special guest Dr. Kiran Maski discussing “Treatment Options for IH.”
To learn more about Dr. Maski, please read her bio on our Medical Advisory Board webpage.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-02-26 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, February 26, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, February 26th. We will meet via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion with Kimberly McCleary from the Kith Collective to discuss “Illuminate Hypersomnia: Shining Light on the Lived Experience of Idiopathic Hypersomnia.”
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
ABOUT OUR SPEAKER – KIMBERLY MCCLEARY
Kim has been at the forefront of patient engagement for more than 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications, served on dozens of steering committees and advisory boards, is a sought-after speaker, and has an extensive network of leadership contacts. Her passion for this work is rooted in personal experience, lived as a patient and as a family caregiver.
In early 2018, Kim founded The Kith Collective. Prior to this, Kim was managing director of FasterCures, a center of the Milken Institute, where she led the Patients Count program for five years and also served as interim executive director. For 22 years she was CEO of a national patient organization, the CFIDS Association of America (now the Solve ME/CFS Initiative), leading patient engagement, research, public policy, and development for the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) community. ME/CFS was the first topic selected by FDA for meeting under the patient-focused drug development (PFDD) initiative begun under PDUFA-V in 2013.
ABOUT THE KITH COLLECTIVE
To speed adoption of patient-centricity by life science companies, not-for-profit organizations, and academic research teams, The Kith Collective was established as a professional services consulting firm to serve corporate and not-for-profit clients. We work with teams and communities of all sizes that are focused on various (rare and prevalent) disease states/therapeutic areas, at different stages of maturity in their organizational lifecycle, and with varying degrees of familiarity with patient-centricity and patient-focused medical product development.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-03-25 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The March UNIGHT meeting will discuss “Nutritional Considerations for Central Disorders of Hypersomnolence” with special guest Ellen Wermter.
ABOUT OUR SPEAKER – ELLEN WERMTER
Ellen is a family nurse practitioner and diplomate in behavioral sleep medicine (DBSM). She is a dedicated sleep professional who actively treats patients full time at Charlottesville Neurology and Sleep Medicine in Virginia. Ellen offers CBT for both insomnia and hypersomnia. In addition to her clinical work, she is a regular contributor with the Better Sleep Council as well as other media outlets about the science of sleep and healthy rest. Ellen enjoys sharing her expertise in the sleep field through guest lecturing at universities and other speaking engagements. She is a member of the medical advisory board for Narcolepsy Network.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-04-29 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. This month’s UNIGHT discusses “Mental Health in Central Disorders of Hypersomnolence” with special guest Alicia Roth, Ph.D. DBSM.

ABOUT OUR SPEAKER – Alicia Roth, Ph.D. DBSM, is a Clinical Health Psychologist and Staff at the Cleveland Clinic Sleep Disorders Center and is board-certified in Behavioral Sleep Medicine. She completed her doctoral training at the University of Florida, Internship at the Baltimore VA, and Behavioral Sleep Medicine Fellowship at The Cleveland Clinic. Her clinical work focuses on treating a range of sleep disorders, including insomnia, circadian rhythm disorders, central disorders of hypersomnia and nightmares, as well as CPAP desensitization.
She has published numerous research articles on the intersection of sleep and chronic health conditions (e.g., fibromyalgia, heart disease, and persons with Alzheimer’s and their caregivers). Dr. Roth’s current research focuses on implementation of population health initiatives for insomnia treatment as well as developing treatments for central disorders of hypersomnia. In 2022, she was awarded the Society of Behavioral Sleep Medicine (SBSM) Early Career BSM Advocacy Award.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

Houston, TX - HF Conference
2024-05-31 - 2024-06-02 | C Baldwin Hilton Hotel in Houston, 400 Dallas Street, Houston, TX, 77002, United States
Join us in Houston, Texas from May 31 – June 2, 2024!
REGISTER HERE!
Join us in beautiful Houston, Texas for the Hypersomnia Foundation’s #BeyondSleepy 2024 Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and discussion sessions; an evening reception; and more. Come catch up with old friends and meet new ones. The conference will be held at the C. Baldwin Hilton Hotel Houston. Book your room at a discounted conference rate today!
With the generous support of our sponsors, virtual registration is now free!
Whether you attend in-person or virtually, you’ll also get access to recordings of all the general sessions for 3 months after the conference via Whova, so you can still “attend” even if those dates/times don’t work for you! (Please note that all breakout sessions are only available live in person. They will not be recorded or streamed.)
REGISTER TODAY!

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-06-24 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join this month’s UNIGHT for a discussion with Maggie G. Lavender, MSN, RN, FNP-C, on “Communication with Your Healthcare Provider.”
ABOUT OUR SPEAKER – Maggie Lavender, MSN, RN, FNP-C, is a Board-Certified Family Nurse Practitioner licensed in Texas with specialization in Sleep Disorders Medicine and Neurology. She attended Louisiana State University Health Sciences Center, where she received her Bachelor of Science in Nursing. She began her career working in a pediatric intensive care and burn unit. She later moved to Houston, Texas and continued her career in a neuroscience intensive care unit at a level one trauma center. She then completed her Master of Science in Nursing and Post-Master’s Emergency Nurse Practitioner Certificate simultaneously at the University of Texas Health Science Center. Her Nurse Practitioner career began in Houston, Texas at Comprehensive Sleep Medicine Associates (CSMA) alongside Dr. Jerald Simmons, beginning in 2012. She briefly moved to Pittsburgh and provided care at an Internal Medicine Practice before moving back to The Woodlands, Texas. She is currently practicing again at CSMA and is specializing in comprehensive sleep disorders, neurology, and epilepsy. Maggie has evolved to be a recognized Nurse Practitioner specialist on a national level, and currently functions as a consultant and lecturer on the management of narcolepsy patients.
Maggie’s passion for nursing and caring for people began in early childhood. She has always been driven to provide exceptional care to every one of her patients, not only treating symptoms, but also by educating and providing preventative medical care to promote healthy lifestyles. Maggie is forever grateful for the blessing and opportunity to care for and help individuals regain their happiness in life.
Maggie and her husband reside in Montgomery, Texas with their daughter and son. In her spare time, she enjoys cooking, gardening, and spending quality time with her family.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-07-29 19:00 - 21:30
UNIGHT – Discuss. Share. Connect.
Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is a discussion on “Using Your Voice For Change” featuring special guest Josh Andrews. Josh will share his journey as an NFL player, husband, and father living with narcolepsy and explain why he’s chosen to advocate for sleep health and sleep disorder awareness.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.

ABOUT OUR SPEAKER – JOSH ANDREWS
Josh Andrews became a Super Bowl champion in 2017 while playing as an offensive lineman for the Philadelphia Eagles. He started playing football at a young age and continued through high school and college at Oregon State University. His athletic talents led him to positions on several NFL teams, including the Minnesota Vikings, Indianapolis Colts, New York Jets, Atlanta Falcons, and New Orleans Saints. Josh and his wife Amber have three children, and Josh is also living with narcolepsy.

Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-08-26 19:00 - 21:00
UNIGHT – Discuss. Share. Connect.
Monday, August 26, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, August 26 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion about “Sleep Health Disparities” with Dr. Michael Grandner.

ABOUT OUR SPEAKER – DR. MICHAEL GRANDNER
Dr. Grandner is a licensed Clinical Psychologist certified in Behavioral Sleep Medicine, Director of the Sleep and Health Research Program, and Associate Professor of Psychiatry, Psychology, Medicine, Nutritional Sciences, and Clinical Translational Science at the University of Arizona. His clinical work focuses on non-medication treatments for sleep disorders. His research examines the relationship between sleep and obesity, diabetes, heart disease, daytime functioning, and longevity. He is the author or co-author of over 250 academic publications. He is a frequent consultant and speaker on the issue of sleep health and has been invited multiple times to the US Congress to discuss the role of sleep in health and functioning. He is a fierce advocate for sleep disorders patients and for helping improve the patient experience.

Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-09-30 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, September 30, 2024 at 7:00 p.m. (Eastern) via Zoom
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us Monday, September 30 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a panel discussion on clinical trials focusing on their significance and tackling common misinformation surrounding them. Our panelists will include Diana Kimmel, Hypersomnia Foundation Board member, and Shelly Gonzales, Hypersomnia Foundation volunteer.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

VIRTUAL and IN-PERSON – Atlanta, GA - #BeyondSleepySatellite HF Conference
2024-10-19 10:00 - 16:00
The Hypersomnia Foundation is hosting a series of one-day hybrid conferences throughout the United States, providing a wonderful opportunity to connect with others living life with a sleep disorder. Our next #BeyondSleepySatellite event is in Atlanta, Georgia on Saturday, October 19, 2024, from 10:00 a.m. to 5:00 p.m. (ET) at the Emory Conference Center Hotel.
The day kicks-off with breakfast at 9:00 a.m. with presentations beginning at 10:00 a.m. Lunch and snacks will be provided during a day of breakout sessions, ample Q&A, and a panel discussion. Dinner will be provided at the conclusion of the day.
Registration for #BeyondSleepySatellite: Together in Atlanta is $20 per person. Coming with your family? Each additional family member is $5 per person.
For those traveling to Atlanta, we have secured a room reservation block at the Emory Conference Center Hotel. For rates and reservations, visit their website.
We look forward to getting #BeyondSleepy together in Atlanta!

VIRTUAL: UNIGHT - Discuss. Share. Connect.
2024-11-25 19:00 - 20:30
UNIGHT – Discuss. Share. Connect.
Monday, November 25, 2024 at 7:00 p.m. (Eastern) via Zoom
This month’s topic: Actigraphy in Central Disorders of Hypersomnolence: Wearables and Sleep Tracking
UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, November 25, at 7:00 PM Eastern / 4:00 PM Pacific via Zoom for a discussion on the strengths, limitations, and overall utility of wearable sleep tracking technology for research and clinical applications. The session will be led by Jesse Cook, PhD, a postdoctoral fellow in the Department of Psychiatry at the University of Wisconsin-Madison School of Medicine and Public Health.

About Our Speaker – Jesse Cook, PhD
Jesse Cook, PhD (he/him) is a postdoctoral fellow in School of Medicine of Public Health, Department of Psychiatry, at the University of Wisconsin-Madison. He received his doctoral degree in Clinical Psychology from the University of Wisconsin-Madison and completed his pre-doctoral internship at the VA Palo Alto Health Care System. His scientist-practitioner training and skillset centers on the intersection of sleep and mental health, with his primary program of research purposed to advance the classification, assessment, and treatment of Idiopathic Hypersomnia/Hypersomnolence Disorder. Additionally, he has produced a body of research related to the strengths, limitations, and overall utility of wearable sleep tracking technology for research and clinical purposes, and recently served as a coauthor for the inaugural State of the science and recommendations for using wearable technology in sleep and circadian research. Clinically, he embraces an integrative orientation, drawing principally from CBT and third-wave therapy approaches (i.e., ACT and DBT). He is very passionate about behavioral sleep medicine and intends to specialize as a Diplomate in Behavioral Sleep Medicine.
Registration for UNIGHT is FREE!
Each UNIGHT meeting is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Zoom link will be sent via email after registration.
Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

UNIGHT - Support4Supporters
2025-03-12 19:00 - 20:00
UNIGHT is a free virtual get-together for people who care for someone who has a sleep disorder. This group will meet on the second Wednesday of each month via Zoom and will be led by the amazing Christine Ingrassia!⁠

#BeyondSleepy Webinar
2025-03-14 12:00 - 15:00
Join on Friday March 14, 2025 for a #BeyondSleepy Webinar where we discuss emerging and important topics relevant to the sleep community. This webinar is free. All are welcome.

#BeyondSleepy Conference
2025-06-06 - 2025-06-08 | The Westin Seattle, 1900 5th Ave, Seattle, WA, 98101, United States
Join us in Seattle, WA from June 6 – June 8, 2025!
Join us at the Westin Seattle from June 6-8, 2025, for the Hypersomnia Foundation’s #BeyondSleepy 2025 Conference—an event dedicated to people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome, as well as their supporters.
We’re bringing together a fantastic lineup of expert speakers to share the latest in research, treatments, and clinical trials. The weekend will also feature networking and discussion sessions, an evening reception, and opportunities to connect with others who truly understand life with a hypersomnia disorder.
With the generous support of our sponsors, virtual registration is free!
Whether you attend in-person or virtually, you’ll also get access to recordings of all the general sessions for 3 months after the conference via Whova, so you can still “attend” even if those dates/times don’t work for you! (Please note that all breakout sessions are only available live in person. They will not be recorded or streamed.)
Hotel Room Block Booking
