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September 2020

BERLIN/VIRTUAL: EU-NN’s European Narcolepsy Day 2020

September 5, 2020

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is in the Central European Time zone. However, the events will be uploaded afterward and available on demand. Register by August 31, 2020.

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VIRTUAL: American School Health Association 2020 Conference

September 30, 2020 - October 1, 2020

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia.  Greater awareness of IH by school health professionals means a greater chance that students with sleep disorders will get an early (and correct) diagnosis!

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October 2020

VIRTUAL: Society of Anesthesia and Sleep Medicine 10th Annual Meeting

October 1, 2020 - October 2, 2020

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General. Note: If you can't attend during the actual conference, your registration will allow you to log in and access presentations/etc. for a number of weeks after the conference. Sessions scheduled…

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VIRTUAL: HF’s The Research Continues

October 24, 2020 @ 1:00 pm - 2:30 pm EDT
Free

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research and the pharmaceutical sides will update us on where their research studies and clinical trials stand. You will not want to miss this virtual event!…

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January 2021

VIRTUAL: Your Best Self—New Ways of Thinking About Disability & Support

January 30, 2021 @ 1:00 pm - 2:30 pm EST
Free

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support group for you—or even start your own. You will not want to miss this virtual event! Sessions will include discussions with: Anjel Burgess, Esq, of Burgess & Christensen in Atlanta. She is a prominent disability attorney and HF Board member, who has represented numerous people with IH and related disorders

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May 2021

VIRTUAL MEET & GREET: “I’m Newly Diagnosed – What Does This Mean?”

May 1, 2021 @ 1:00 pm - 2:30 pm EDT
Free

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet one another! The first meeting in the series, “I’m Newly Diagnosed - What Does This Mean?” is scheduled for May 1 at 1:00 p.m. Eastern/10:00 a.m. Pacific. If you have been diagnosed within the last year with IH or a related sleep disorder, you won’t want to miss this event.…

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VIRTUAL: Diagnosing Hypersomnia Differently—A European Proposal

May 11, 2021 @ 12:00 pm - 1:30 pm EDT

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to improve our understanding of hypersomnias and developing new methods of diagnosis and treatment. We've invited Dr. Gert Jan Lammers of Leiden University in the Netherlands to share with us a recent proposal for changing the diagnosis and categorization of both narcolepsy and idiopathic hypersomnia. The backstory: A group of prominent…

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June 2021

VIRTUAL: APSS SLEEP 2021 (a conference for sleep medicine professionals)

June 12, 2021 - June 16, 2021

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS). The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine,…

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VIRTUAL – Sleep/Wake Cyclers Ride for Research 2021

June 12, 2021

The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021. All ages and abilities are welcome. Whether your ride two miles or 200, ride on a bike trail, around your neighborhood, on a stationary bike in your living room, or across the country on your Harley, anyone who wants to help us raise money for hypersomnia research…

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VIRTUAL MEET & GREET – “Self Advocacy: Getting Your Best Care”

June 17, 2021 @ 7:00 pm - 8:30 pm EDT

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about the challenges of advocating for timely and quality care for idiopathic hypersomnia, narcolepsy and Kleine-Levin syndrome. Following a short panel presentation, we’ll break into chat rooms to talk about this issue together. Co-hosted by Hypersomnia Alliance Co-Founder Diana Kimmel and HF Board Members Sarah Beazley and Veronica Moore. Space is…

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