RARE DISEASE DAY
2017-02-28

WORLD SLEEP DAY
2017-03-17

BEDRICH ROTH'S BIRTHDAY
2017-03-23

Top Docs Radio
2017-04-18 12:00 - 13:00 (America/New_York)
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT.

BOSTON: HF #BeyondSleepy Conference
2017-06-04 13:00 - 16:30 (America/New_York)
1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116
We have booked Rabb Lecture Hall in the newly renovated Johnson Building at the Boston Public Library for another fabulous regional conference featuring dynamic speakers.In this state-of-the-art facility, our outstanding speakers will cover research updates on idiopathic hypersomnia and related disorders. This year’s conference, however, will also focus on advocacy and empowerment to assist people with hypersomnia and their supporters navigate this world living with a chronic, rare disorder.
For full details, CLICK HERE.

Idiopathic Hypersomnia Awareness Week 2017
2017-09-04 - 2017-09-10
HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please put the dates in your calendar, and be sure to check our social media each day during this important awareness event!

World Sleep 2017
2017-10-07 - 2017-10-11
The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity to increase awareness of IH at this important global meeting of sleep professionals,” said Diane Powell, Chairwoman of HF’s Board of Directors. “It’s also encouraging that hypersomnias will be the subject of three different events at the meeting itself.”

BALTIMORE: HF #BeyondSleepy Conference
2018-06-02 - 2018-06-03 | Baltimore Waterfront Marriott, United States
For all the details: CLICK HERE.
For the full schedule, CLICK HERE.

DENVER: ACHA (American College Health Association) 2019 Annual Meeting
2019-05-28 - 2019-06-01 | Sheraton Downtown Hotel, Denver, Colorado, 1550 Court Place, Denver, CO, 80202, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among nearly 2,000 college health providers to raise awareness of IH and provide education about rare sleep disorders to those most likely to be consulted by sleepy students.
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! If we raise awareness and share information on these rare sleep disorders, we believe more people with excessive daytime sleepiness would be referred for sleep evaluations, sooner. (Imagine if we could shorten the time between symptoms and diagnosis, thought to be 6-7 years on average!)

SAN ANTONIO: SLEEP 2019 – APSS (Associated Professional Sleep Societies) Annual Meeting
2019-06-08 - 2019-06-12 | Henry B. González Convention Center, San Antonio, 900 E Market St, San Antonio, TX, 78205, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around the U.S. and across the globe.
HF Board Members will be on hand to welcome the expected heavy traffic at our exhibit booth at one of the most important annual sleep medicine meetings; we will network, educate, and distribute brochures and information. When appropriate, we will offer internet signups to our online provider directory on our website. We will also attend meetings with other sleep organizations and pharmaceutical companies. Finally, HF will host a private annual meeting of our Medical and Scientific Advisory Boards and this year, our Board of Directors will hold an in-person Strategic Board Meeting to set short- and long-term goals and objectives to advance HF’s mission.
NOTE: This year, there will be several sessions for sleep professionals on idiopathic hypersomnia, as interest in researching and treating this disorder has grown. In addition, HF Medical Advisory Board chair Dr. Lynn Marie Trotti will present during the poster session. At least one HF Board member will attend each of these and prepare written reports for our SomnusNooze newsletter!

BOSTON: ASCA (American School Counselors Association) 2019 Annual Conference
2019-06-29 - 2019-07-02 | Hynes Convention Center, Boston MA, 900 Boylston St, Boston, MA, 02115, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF will exhibit and network among nearly 3,600 school counselors to raise awareness of IH and provide education about rare sleep disorders to those most likely to be sent students who frequently sleep in class.
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! If we raise awareness and share information on these rare sleep disorders, we believe more people with excessive daytime sleepiness would be referred for sleep evaluations, sooner. (Imagine if we could shorten the time between symptoms and diagnosis, thought to be 6-7 years on average!)

SEATTLE: HF Educational Meeting
2019-06-29 10:00 - 15:00 (America/Los_Angeles) | Seattle Airport Marriott, 3201 South 176th Street, Seattle, WA, 98188, United States
This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event.
This gathering will be the first HF outreach and awareness event on the West Coast, and is open to everyone!
Click HERE to purchase your tickets now on Eventbrite. The cost is $25 and includes lunch.
Register before May 30 to receive a FREE “Getting #BEYONDSLEEPY in Seattle!” t-shirt.
[For anyone taking part in Hypersomnia Alliance’s “Snooze Cruise 2019,”* note that this meeting is conveniently scheduled for the day after your tour disembarks in Seattle!]
The Hypersomnia Foundation has been able to reserve a limited block of rooms at the Seattle Airport Marriott for $142/night on Friday, June 28th and Saturday June 29th. Reserve your room now!
Guest speakers include:

Dr. David Rye of Emory University
Dr. Flavia Consens of University of Washington/Harborview Medical Center
Rebecca King, HF’s new Legislative Advocate, will share her current advocacy work in Washington, D.C. and at the NIH in Bethesda as she fights for increased funding for sleep disorder research.
Sarah Beazley, Hypersomnia Foundation Board member, will hold an interactive workshop on “Effective Self-Advocacy” for people with IH and related sleep disorders.
Julie Flygare, President & CEO of Project Sleep, will present “Taking Action Through Advocacy” showing how each of our voices makes a difference in educating decision-makers and advancing science to improve outcomes for those living with IH.
Representatives from Balance Therapeutics will also provide information about their ongoing Arise2 IH clinical trial.

*Please note that “Snooze Cruise 2019” is a separate event, organized through the Hypersomnia Alliance, not the Hypersomnia Foundation. (For further information about Snooze Cruise, click HERE.)

KANSAS CITY, MO: AAFP (American Association of Family Physicians) National Conference for Medical Students and Family Medicine Residents
2019-07-25 - 2019-07-27 | Kansas City Convention Center, 301 West 13th Street, Suite 100, Kansas City, MO, 64105, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 2,500 medical students and family medicine residents in order to raise awareness of IH and provide education about rare sleep disorders to medical professionals who are very likely to encounter sleepy patients first – future family medicine physicians. Most medical schools provide only 3 hours – on average – of instruction about sleep, and HF wants to encourage these young medical professionals to consider the possibility of a sleep disorder when diagnosing a sleepy (or fatigued) patient.

BIRMINGHAM: The First Annual Meeting of SBSM (The Society of Behavioral Sleep Medicine)
2019-09-12 - 2019-09-15 | Renaissance Birmingham Ross Bridge Resort & Spa, 4000 Grand Ave, Birmingham, AL, 35226, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
The Hypersomnia Foundation has accepted an invitation to work with SBSM in the preparation of an educational program on idiopathic hypersomnia. Dr. Lynn Marie Trotti, chair of HF’s Medical Advisory Board, will provide two lectures, and HF Board Member Sarah Beazley will present and facilitate a patient impact panel to help attendees understand the life-changing symptoms of IH.

VANCOUVER, BC: WUN-HF Education Day
2019-09-21 08:30 - 16:30 (America/Los_Angeles) | Vancouver Convention Centre, Vancouver, B.C., Canada, 999 Canada Pl, Vancouver, British Columbia, V6C 3C1, Canada
Understanding Narcolepsy and Hypersomnia: Insights and Perspectives
This free event is open to everyone!
HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:
This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, impact of narcolepsy and idiopathic hypersomnia, comorbidity and how to live a full life with narcolepsy and hypersomnia.
This special Education Day is in collaboration with the Hypersomnia Foundation and World Sleep. This will offer a unique opportunity for people with narcolepsy and/or idiopathic hypersomnia to mix and mingle with sleep doctors, clinicians and researchers from World Sleep 2019. It takes place during the first-ever Sleep Expo through World Sleep 2019, a full scientific congress on sleep medicine and research.
Presentations from Dr. Thomas Scammell, Dr. Brian Murray, Dr. Yves Dauvilliers, Kelsey Biddle, Dr. Indra Narang, and Shelly Weiss will address pertinent sleep disorder issues including mental health, transitional care, lifestyle, current research and treatment. There will also be special breakout panel discussions focusing on narcolepsy and idiopathic hypersomnia.
By registering for Wake Up Narcolepsy Education Day at Sleep Expo 2019, you will ALSO have access to Sunday, September 22, 2019 Sleep Expo Program– including Public Lecture Series, Facilitator-Led Discussion, and Sleep-Related Author Tables.
Registration is free – click on this link and scroll all the way to the bottom to find the ORANGE “Register” button: https://www.wakeupnarcolepsy.org/education-day/

PHILADELPHIA: AAFP (American Association of Family Physicians) Family Medicine Experience (FMX) 2019
2019-09-24 - 2019-09-27 | Pennsylvania Convention Center, Philadelphia, PA, 1101 Arch St, Philadelphia, PA, 19107
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 5,000 family medicine physicians in order to raise awareness of IH and provide education about rare sleep disorders to medical professionals who are most likely to encounter sleepy patients first. Most medical schools provide only 3 hours – on average – of instruction about sleep, and HF wants to encourage family physicians to consider the possibility of a sleep disorder when diagnosing a sleepy (or fatigued) patient.

CHICAGO: HF Educational Meeting
2019-10-19 10:00 - 15:00 (America/Los_Angeles) | Sheraton Suites, Chicago O’Hare, 6501 Mannheim Road, Rosemont, IL, 60018, United States
The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O’Hare Hotel, from 10:00 a.m. – 3:00 p.m. Tickets are $25 and includes a buffet lunch.
Registered event attendees are invited to attend a free Meet & Greet socializing hour planned for Friday, October 18 at 5:30 p.m. at the venue hotel.
There are a limited block of rooms at the Sheraton Suites O’Hare Hotel at the rate of $115/night. This rate will be available both Friday, October 18th and Saturday, October 19th.
Scheduled speakers include:
Dr. David B. Rye of Emory University will participate in a Q&A session on Hypersomnolence Sleep Disorders: IH, narcolepsy and Kleine-Levin; moderated by Hypersomnia Foundation Board member Betsy Ashcraft.
Dr. Thien Thanh Dang-Vu of the Concordia University (Montreal) will present his recently published study: Beyond Sleepy: Structural and Functional Changes of the Default-Mode Network in Idiopathic Hypersomnia.
Dr. David Plante of the University of Wisconsin will discuss his recently published study Hypersomnolence and Depression.
Sarah Beazley, Hypersomnia Foundation Board Member, patient advocate and former nurse, will hold an interactive workshop on Effective Self-Advocacy: Getting Your Best Care for people with IH and related sleep disorders.
Amy Desmarais, Hypersomnia Foundation Board Member, will share her personal story: The Journey of Living with a Rare Sleep Disorder.
Rebecca King, Hypersomnia Foundation’s new Legislative Advocate and Board member, will share her advocacy efforts in Washington, D.C. and at the National Institute of Health in Bethesda, where she has worked for increased funding for sleep disorder research.

This event will be similar to our Seattle Education Meeting, which was held in June.

ATLANTA: The Southern Sleep Society 42nd Annual Meeting
2020-03-26 - 2020-03-29 | Renaissance Waverly Hotel and Convention Center, 2450 Galleria Pkwy, Atlanta, GA, 30339, United States
Note: This is not a patient event. Read on to learn why HF is participating in this important meeting!
HF is participating in this event and providing a patient panel on Friday, March 27, 4:00 PM – 5: 30 PM, titled Patient & Physician Stories & Perspectives in an Era of Novel Treatment Modalities. HF’s Scientific Advisory Board Chair, Dr. David Rye, will moderate, and PAAC member Diana Kimmel will be one of three the patients on the panel. Current board member, Sarah Beazley, and retired/founding board member Cat Rye, will also host an HF display table.

PHILADELPHIA: HF Conference
2020-06-13 - 2020-06-14 | Le Méridien Philadelphia, 1421 Arch Street, Philadelphia, PA, 19102, United States
The Hypersomnia Foundation has CANCELLED our June 2020 Conference.
Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June 2020 Conference in Philadelphia.
While there is no doubt this is the right decision, and many have lost much more to this pandemic, it’s still difficult to give up one of the few opportunities in our community to meet in person. So many people with IH, narcolepsy and KLS routinely live in a state of lock-down because of their disorder. Talking about those experiences with one another is rare itself, and hearing directly from the dedicated researchers and physicians who have made rare sleep disorders the focus of their work is inspiring. We’ll hope for better days when we can meet again.
In the meantime, we extend our heartfelt wishes to everyone in the rare sleep disorder community, for your safety and well-being, and we thank you for your support of the Hypersomnia Foundation.
If you purchased tickets to the conference, refunds will be processed through EventBrite in the next 48 hours.
If you have made reservations through our room block at our hotel venue, Le Meridien, cancellations can be made by calling Marriott’s central reservation line at (888) 236-2427 as the Le Meridien hotel itself is closed.
If you have questions, please contact our Executive Director, Stephanie Wells at stephanie@hypersomniafoundation.org

PHILADELPHIA: APSS SLEEP2020 (a conference for sleep medicine professionals)
2020-08-27 - 2020-08-30
Note: If you are looking for info on HF’s conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please click here: Beyond Sleepy in Philadelphia
The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Due to the COVID-19 pandemic, this meeting will be virtual.
From the website: https://www.sleepmeeting.org/about/:
SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS).
The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep and circadian research, promotes the translation of basic science into clinical practice, and fosters the future of the field by providing career development opportunities at all levels. There is simply no other gathering of sleep professionals anywhere of this scale. The conference is attended by thousands of individuals from all around the world, all connected by their interest and/or expertise in sleep medicine. Many of these attendees are pioneering leaders in the field. If you are looking to network, you must attend SLEEP.

BERLIN/VIRTUAL: EU-NN's European Narcolepsy Day 2020
2020-09-05
This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual.
Get the program, keeping in mind that Berlin is in the Central European Time zone. However, the events will be uploaded afterward and available on demand.
Register by August 31, 2020.

VIRTUAL: American School Health Association 2020 Conference
2020-09-30 - 2020-10-01
As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia. Greater awareness of IH by school health professionals means a greater chance that students with sleep disorders will get an early (and correct) diagnosis!

VIRTUAL: Society of Anesthesia and Sleep Medicine 10th Annual Meeting
2020-10-01 - 2020-10-02
FREE VIRTUAL CONFERENCE!
The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year’s theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General.
Note: If you can’t attend during the actual conference, your registration will allow you to log in and access presentations/etc. for a number of weeks after the conference.
Sessions scheduled during this two-day virtual event include:
• Sleep and Anesthesia during the COVID-19 Pandemic
• The Role of Gender on Sleep and Pain
• The Future of Research and Research Funding in Sleep Medicine
• Cannabinoids for Pain and Sleep
As part of HF’s mission to raise awareness and advocate for more research and better treatments, HF representatives will attend and present their stories, followed by a brief Q&A. The session is entitled “Patient Perspectives: Living with Idiopathic Hypersomnia” and is scheduled for October 1.
For more details, including the program, CLICK HERE.
REGISTER for this FREE event TODAY!
*****Helpful Information for Registering as a Patient*****

On the registration form, under the “Specialty” section, you can check “Other” and then in the pop-up box, you can write “Patient” or “HF Constituent” or both.
This event is FREE for the HF community to attend, but there is no “Free” option on the registration form. Therefore, ignore “Payment Type” and click “SUBMIT”.
When you get to the payment section, DO NOT PAY! This event is free for patients, family members, interested parties, and caregivers. Click on “Add Another Participant” then exit out of the page. It has been confirmed by SASM that you will be registered. We have also been told there are no automated registered emails being sent out but a Zoom invitation from SASM will be sent closer to the event.

If you have questions or concerns, please contact stephanie@hypersomniafoundation.org to help walk you through the registration process.

VIRTUAL: HF's The Research Continues
2020-10-24 13:00 - 14:30 (America/New_York)
The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers!
Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research and the pharmaceutical sides will update us on where their research studies and clinical trials stand. You will not want to miss this virtual event!
Sessions will include:

HF Research Award Recipient Dr. Caroline Maness will provide an update on her research “Cytokine Profiles in the Central Disorders of Hypersomnolence” and participate in a live Q&A with our viewers. Cytokines are known for their role in inflammatory responses, and recently have been discovered to play a role in sleep, sleepiness, and fatigue. Dr. Maness’ study aimed to further clarify the cytokine profiles of patients with sleep apnea, narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia, as well as people who are clinically sleepy but do not fit into one of these diagnostic categories. Cytokine profiles for these groups, as well as a group of healthy controls, were compared along with sleep study data and survey data that measured levels of depression, sleepiness, and fatigue. With better understanding of the cytokine mixture in the various disorders of hypersomnolence, the hope is that cytokines can be used as a future therapeutic target for symptom control.
HF Research Award Recipient Dr. Todd Bishop, will provide an update on his research on IH within the U.S. Veterans Health Administration and participate in a live Q&A with our viewers. He will 1) provide an update on efforts to develop and validate a case ascertainment algorithm that will be used to accurately identify cases of idiopathic hypersomnia within large electronic medical records and 2) describe plans for pending analyses regarding IH in the Veteran population.
Christina Brundage, Hypersomnia Foundation Volunteer and IH Patient Advocate will share her personal experiences in “Christina’s Story: Volunteering for IH Clinical Trials”.
Dr. Marisa Whalen, Associate Director, Medical Affairs at Jazz Pharmaceuticals will provide updates on research studies in “Unlocking Pharmaceutical Discoveries: Developing Meaningful Treatments that Address Patient Needs”.

You will not want to miss this virtual event!
Register today!

VIRTUAL: Your Best Self—New Ways of Thinking About Disability & Support
2021-01-30 13:00 - 14:30 (America/New_York)
Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support group for you—or even start your own. You will not want to miss this virtual event!
Sessions will include discussions with:

Anjel Burgess, Esq, of Burgess & Christensen in Atlanta. She is a prominent disability attorney and HF Board member, who has represented numerous people with IH and related disorders who are applying for disability. Many people have an emotional reaction to the word “disability” and for people with a sleep disorder, the term can be especially confusing. Am I disabled? What does this mean for me? Anjel will share her observations of the emotional aspects of that journey, and how to manage those hurdles. Whether or not you expect to apply for disability benefits, you won’t want to miss this important discussion!

Diana Kimmel of the Hypersomnia Alliance. She is a well-known (and extraordinary) patient advocate in the hypersomnia community. Diana co-organizes the popular “Snooze Cruise” retreats, and facilitates a support group in Atlanta. Are you wondering if there are others out there who are looking for a support group? How do you find them, what makes a successful support group—should you try to start one yourself? Diana will share what makes a support group successful, and the nuts and bolts of organizing virtual and in-person groups.

You will not want to miss this virtual event!
Register today!

VIRTUAL MEET & GREET: "I’m Newly Diagnosed - What Does This Mean?"
2021-05-01 13:00 - 14:30 (America/New_York)
Introducing the Hypersomnia Foundation’s new “MEET & GREET” series – interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet one another!
The first meeting in the series, “I’m Newly Diagnosed – What Does This Mean?” is scheduled for May 1 at 1:00 p.m. Eastern/10:00 a.m. Pacific. If you have been diagnosed within the last year with IH or a related sleep disorder, you won’t want to miss this event. Space is limited, so register today!
Join us via Zoom with cameras on, for a lively, short discussion about the resources and organizations that are available to help; then we’ll divide into small groups in breakout rooms to chat. When you have a rare disorder, just being in a room – even a virtual room – with others who know exactly what you’re dealing with can be encouraging.
The meeting will be hosted by Sarah Beazley & Diane Powell of the Hypersomnia Foundation and Diana Kimmel of the Hypersomnia Alliance.
THANK YOU to our Sponsors for this MEET & GREET event:

Avadel Pharmaceuticals
Harmony Biosciences
Jazz Pharmaceuticals
Takeda Pharmaceutical Company

Together we will get #BeyondSleepy!

VIRTUAL: Diagnosing Hypersomnia Differently—A European Proposal
2021-05-11 12:00 - 13:30 (America/New_York)
Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal.
Did you know? Sleep researchers around the world are working hard to improve our understanding of hypersomnias and developing new methods of diagnosis and treatment.
We’ve invited Dr. Gert Jan Lammers of Leiden University in the Netherlands to share with us a recent proposal for changing the diagnosis and categorization of both narcolepsy and idiopathic hypersomnia.
The backstory: A group of prominent sleep specialists in Europe became interested in this topic because many of their patients had credible complaints of hypersomnolence but didn’t meet current diagnostic criteria. Convinced that their patients’ complaints were real and that they deserved to receive a diagnosis and treatment, the researchers set out to promote the use of extended sleep studies and propose establishing three new diagnostic categories:

narcolepsy,
idiopathic hypersomnia, and
idiopathic excessive sleepiness.

Each diagnosis category has two possible levels of certainty, either “certain” or “probable,” depending on which tests are used for diagnosis and the levels of key measurements in each test.
Some European researchers are already using the proposed diagnostic criteria to evaluate their patients and to define patient samples in research studies. A new European proposal for treatment guidelines is also based on the new diagnostic categories. (An official update to the International Classification of Sleep Disorders probably won’t happen for another few years.)
Please join the Hypersomnia Foundation and Dr. Lammers to learn more about these efforts in Europe and the possible implications for both clinical treatments and research in the U.S.

VIRTUAL: APSS SLEEP 2021 (a conference for sleep medicine professionals)
2021-06-12 - 2021-06-16
The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments.
From the website https://www.sleepmeeting.org/about/:
SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS).
The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep and circadian research, promotes the translation of basic science into clinical practice, and fosters the future of the field by providing career development opportunities at all levels. There is simply no other gathering of sleep professionals anywhere of this scale. The conference is attended by thousands of individuals from all around the world, all connected by their interest and/or expertise in sleep medicine. Many of these attendees are pioneering leaders in the field. If you are looking to network, you must attend SLEEP.

VIRTUAL - Sleep/Wake Cyclers Ride for Research 2021
2021-06-12
The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021.
All ages and abilities are welcome. Whether your ride two miles or 200, ride on a bike trail, around your neighborhood, on a stationary bike in your living room, or across the country on your Harley, anyone who wants to help us raise money for hypersomnia research is welcome to join our virtual team and raise $20,000 for research.
Email Rebecca@hypersomniafoundation.org if you are interested in joining our Sleep/Wake Cyclers team and learn more about the ride HERE.
Riders and supporters, join us now and Ride for Research!

VIRTUAL MEET & GREET – "Self Advocacy: Getting Your Best Care"
2021-06-17 19:00 - 20:30 (America/New_York)
Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET – “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about the challenges of advocating for timely and quality care for idiopathic hypersomnia, narcolepsy and Kleine-Levin syndrome.
Following a short panel presentation, we’ll break into chat rooms to talk about this issue together. Co-hosted by Hypersomnia Alliance Co-Founder Diana Kimmel and HF Board Members Sarah Beazley and Veronica Moore. Space is limited, so sign up soon!
