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Act Today and Let Your Voice Be Heard

Very recently, the Hypersomnia Foundation became aware of an opportunity to help shape the future of sleep research. The National Institutes of Health, the primary source of funding for medical research in the United States, has issued a Request for Information, which you can view at: https://grants.nih.gov/grants/guide/notice-files/NOT-HL-16-312.html. The final date to...

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Your Journey Fosters Awareness

There is no greater agony than bearing an untold story inside you—Maya Angelou Your personal story about hypersomnia is a powerful means to raise awareness of a journey with a rare chronic disorder. Although each person’s experiences are unique, people with hypersomnia share similar stories of...

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BUNIHPPS Study Final Reminder

This is your final reminder email about BUNIHPPS- a survey research study for patients with narcolepsy or idiopathic hypersomnia. Dr. William DeBassio and Sara Kowalczyk are the study investigators of the Boston University Narcolepsy and Idiopathic Hypersomnia Patient Perspectives Study (BUNIHPPS). The researchers thank all who have...

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BUNIHPPS – An Online Research Survey for Narcolepsy & IH Patients

http://tiny.cc/BUNIHPPS Dear IH Community members: A research team at Boston University has developed BUNIHPPS -- a survey research study for patients with narcolepsy and idiopathic hypersomnia. Also called the Boston University Narcolepsy and Idiopathic Hypersomnia Patient Perspectives Study, BUNIHPPS is an anonymous online survey forging into new...

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Research Opportunity

Victoria University, Melbourne Australia is commencing a study about the general health and well-being of people within three groups. One group will be those with both narcolepsy and cataplexy. Cataplexy is a sudden loss of muscle tone, often triggered by emotional arousal. Another group will be...

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