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CoRDS Registry

SomnusNooze Articles > Research > CoRDS Registry


YOU Power the Engine for #BeyondSleepy

Medical Advisory Board (MAB) and Scientific Advisory Board (SAB) volunteers: The Hypersomnia Foundation’s Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and clinical work. The CoRDS registry questions were shaped by...

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You Are Amazing!

  Once again, our incredible hypersomnia family has come together to support each other in a most amazing way. As you know, several anonymous donors challenged our community to enroll in the Hypersomnia Foundation Registry at CoRDS during the month of September. You responded beyond anyone’s...

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Together, We Can Solve the Puzzle of Hypersomnia

Together, We Can Solve the Puzzle of Hypersomnia [caption id="attachment_2494" align="alignright" width="300"] What is a Patient-Powered Registry?Simply put, a patient registry is a collection—for one or more purposes—of standardized information about a group of patients who share a condition or experience. According to a publication from the...

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Sleep Disorders and Social Security– What You Need to Know

Social Security Disability Series: Part 2 Sleep Disorders and Social Security Disability – What You Need to Know By Anjel Burgess, JD Jennie has been fortunate enough to secure her short-term disability benefits. She has also hired an Attorney to assist her with the Social Security Disability application...

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Solving the Puzzle of Hypersomnia One Piece at a Time

The Hypersomnia Foundation Board of Directors is thrilled to announce the launch of the Hypersomnia Foundation’s Registry at CoRDS (Coordination of Rare Diseases at Sanford). Whether you have idiopathic hypersomnia, Kleine-Levin syndrome or narcolepsy type 1 or 2, please enroll in the Registry today to...

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