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Idiopathic Hypersomnia

SomnusNooze Articles > Hypersomnias > Idiopathic Hypersomnia


Idiopathic Hypersomnia Featured in Self Magazine!

The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the full article here: https://www.self.com/story/no-coffee-wont-cure-my-hypersomnia ...

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Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference

On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered...

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YOU Power the Engine for #BeyondSleepy

Medical Advisory Board (MAB) and Scientific Advisory Board (SAB) volunteers: The Hypersomnia Foundation’s Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and clinical work. The CoRDS registry questions were shaped by...

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WEP Clinical – Expanded Access to Medications Not Yet Approved for General Prescription

Do you and your healthcare provider feel you might benefit from access to a medication that is not yet available/approved in your country or that is still in clinical trials? WEP Clinical* might be able to help you with this access. The Hypersomnia Foundation is...

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Idiopathic Hypersomnia Standard Characteristics

It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by our Medical Advisory Board, summarizes the common characteristics of IH. We hope...

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