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SomnusNooze Articles

A United Effort to Fuel Research on Hypersomnia

          A patient registry specific to hypersomnia has been a goal of the Hypersomnia Foundation (HF) since its incorporation in 2014. A patient registry houses information about a group of people with a medical condition, disease, or disorder that is collected in a standardized way. Registries are a...

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Your Journey Fosters Awareness

There is no greater agony than bearing an untold story inside you—Maya Angelou Your personal story about hypersomnia is a powerful means to raise awareness of a journey with a rare chronic disorder. Although each person’s experiences are unique, people with hypersomnia share similar stories of...

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What Does One SOREMP Mean?

Background The primary feature of the two main central disorders of hypersomnolence—narcolepsy and idiopathic hypersomnia (IH)—is excessive daytime sleepiness, defined in the International Classification of Sleep Disorders, third edition, as “daily episodes of an irrepressible need to sleep or daytime lapses into sleep." Overnight sleep testing (polysomnography) and a...

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2015 HF Year in Review

“Overwhelmed!” “Excited!” “Incredibly grateful!”at the Hypersomnia Foundation, we are thrilled beyond belief  following our “Giving Tuesday” campaign that expanded beyond a single day and actually ran through the end of 2015. Your incredible generosity not only met, but far exceeded, the Board members’ challenge to...

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BUNIHPPS Study Final Reminder

This is your final reminder email about BUNIHPPS- a survey research study for patients with narcolepsy or idiopathic hypersomnia. Dr. William DeBassio and Sara Kowalczyk are the study investigators of the Boston University Narcolepsy and Idiopathic Hypersomnia Patient Perspectives Study (BUNIHPPS). The researchers thank all who have...

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HF Welcomes Several New Board Members

The Board of Directors of the Hypersomnia Foundation is pleased to introduce three new board members to the Board of Directors, Scientific Advisory Board, and Medical Advisory Board. Diane Powell and to announce the appointment of two new members of the Scientific Advisory Board, Prof. Nicholas...

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