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SomnusNooze Articles

Together We WILL Solve The Puzzle of Hypersomnia

Why did the Hypersomnia Foundation Board of Directors and volunteers work for more than two years with physicians and researchers to create a hypersomnia-specific registry? Because, as David Meeker, President and CEO of Genzyme, has said, “Creating a registry of patients is the single most...

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Ask the Doctor

  October 2017: We regret to inform you that the Ask the Doctor column will be suspended until further notice. We are regrouping and intend to re-introduce a new and improved column with guidelines and parameters that will meet the needs of both our viewing community...

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Together, We Can Solve the Puzzle of Hypersomnia

Together, We Can Solve the Puzzle of Hypersomnia [caption id="attachment_2494" align="alignright" width="300"] What is a Patient-Powered Registry?Simply put, a patient registry is a collection—for one or more purposes—of standardized information about a group of patients who share a condition or experience. According to a publication from the...

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