THIS 2016 GIVING SEASON

HELP US GET #BEYONDSLEEPY

An insatiable need to sleep that is not eased by a full night’s slumber is one of the debilitating effects of a rare, chronic neurological disorder called idiopathic hypersomnia (IH). 

IH causes “sleep inertia”, which makes the transition from sleep to waking extremely difficult.  Sleep leaves a mental fogginess, sometimes called sleep drunkenness, which can remain throughout the few hours that people with IH can remain awake. Thinking clearly and carrying out even basic physical tasks can be difficult.  Many people with the disorder sleep up to 11 hours out of 24. The disorder is chronic and the symptoms are relentless, making it extremely difficult for people with IH to hold down jobs, remain in school, maintain marriages and fully engage with their family and friends.

WHAT IS IDIOPATHIC HYPERSOMNIA?

Raise awareness by taking the PJs & Pillows Challenge.

HOW CAN I HELP ?

THERE ARE TWO WAYS !

Support research by donating to restricted funds.

DONATE TO AWARENESSDONATE TO RESEARCH

The Hypersomnia Foundation, Inc. strives to improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions

WHAT IS OUR MISSION?

Put on your favorite G-rated pajamas, grab your favorite pillow, and snap a photo of yourself holding a “Let’s Get #beyondsleepy” sign. You can make your own or use the one we've created for you! Be as creative as possible in choosing your location, but stay safe. (No hanging off of cliffs!)

SUPPORT

RESEARCH

We don’t know how many people have IH. This number is vital for scientists to apply for grants and encourage pharmaceutical companies to study IH.

We don’t have a biomarker, a substance in the body, such as blood or spinal fluid that can tell us whether or not a person has IH.

The tests that we do have are often inaccurate and repeating them is very expensive.

There is no FDA approved treatment; although wakefulness-promoting medications are sometimes prescribed, "off-label".  Unfortunately, these medications don’t work well for everyone, and they may stop working over time and/or have bothersome side effects.

SHARE IT & PASS IT ON

RAISE

AWARENESS

 

TAKE THE CHALLENGE

PJS & PILLOWS

DONATE TO RESEARCH

$28,000 RAISED

$30,000 GOAL

 

MAKE A DONATION!

 

MAKE A DONATION TO

RESTRICTED FUNDS

Donate to the Hypersomnia Foundation's unrestricted fund to support Awareness and Education programs, or support research into IH by donating $25 to the Hypersomnia Foundation’s dedicated fund that can only be used for research grants. If $25 is more than you can afford right now, please realize that no amount is too small. Of course, we will gladly accept amounts larger than $25 as well.

WHY HELP RAISE AWARENESS & SUPPORT RESEARCH?

GRAB YOUR PJS & SNAP A PIC

STEP ONE

STEP TWO

STEP THREE

2016 GIVING SEASON

 

DONATION TRACKER

Take the “Let’s Get #beyondsleepy” PJs & Pillows Challenge and then pass it along to increase awareness and raise funds for research! Keep it going through the entire giving season!

Get the LetterGet the Sign

A two-pronged approach is necessary to combat Idiopathic Hypersomnia. This giving season, the Hypersomnia Foundation has developed the PJs and Pillows Challenge to raise awareness of the symptoms of IH and to raise funds designated solely for research into the cause of and treatments for IH. You can help!

Share your photo on social media, include the #beyondsleepy hashtag in your post, set it to public, then tag a family member or friend to take the challenge next! (It works best if you challenge other to respond within 72 hours!) If you'd rather send an email we've created a letter you can use to edit and make it more personal!

Only through research will improved understanding, accurate diagnostic tests, and effective treatments become a reality.

The Hypersomnia Foundation gladly accepts donations via check. Please make all checks payable to the Hypersomnia Foundation and mail to:

Hypersomnia Foundation
5885 Cumming Highway
Suite 108-255
Sugar Hill, GA 30518

Follow the donate today link, enter any amount of your choice, and consider making your contribution a monthly occurrence. If you don't have a PayPal account, don't worry. You can use your credit card or bank account information directly without being a PayPal user.

HYPERSOMNIAFOUNDATION.ORG

To make donations in publicly traded securities, please contact us at info@hypersomniafoundation.org or visit hypersomniafoundation.org/donate for more donation options!

Want to support the mission of HF? Consider giving a general donation, used to build awareness and education programs!

DONATE TO AWARENESSDONATE TO AWARENESSOr Donate to Research